Reply's and Response's
After setting up this website, I published it to the world by first sending an email to a number of friends and relatives in one email to see if that email would be sent to each and every person named on it. It is possible that by sending an email to multiple persons I could get labelled as a 'spammer'
The reason for this is that I wanted to send the URL of this website to many other persons and organisations and I did not want them bouncing back to me. They were news organisations such as newspapers, tv and radio stations and a second one to all the AM's of the Welsh Assembly, a number of MP's, the Prime Minister and the Secretary of State for Health and also and most importantly to Gwent Healthcare NHS Trust and the Gwent Community Heath Council. How could I forget them?.
It will be interesting just to see if I get any replies at all, although at this moment I have received one from Paul Flynn MP for Newport West (below) and this is where the idea for this webpage has come from. The replies I receive from anybody that emails me personally will be added to this page and especially any that come from our political representatives and if they do not reply or comment on the website, then you will be able to gather just how much these representatives care about my problems and from that, you will be able to gauge just how much they care about yours.
If you follow this link then you can meet the members of the Welsh Assembly, all of whom I have contacted.
If you wish to support me then contact email addresses for the AM's can be found by following the link above.
When I published this site to the web I sent emails to all of the Welsh Assembly members (AM's) to tell them about it so that they could read my story and see how myself and my family were treated by the Gwent Healthcare NHS trust and the Gwent Community Health Council.
I received three replies from Assembly members. They were from Nicholas Bourne, the Conservative leader in the Welsh Assembly, Jocelyn Davies the Plaid Cymru representative for South Wales East and Leanne Wood also of Plaid Cymru who said that they would look at my website about Brendan in more detail.
Although I have no political allegiance or axe too grind, it should be noted that not one member of the Labour Party who supposedly represent working class persons such as myself has made any comment of sympathy, acknowledgement of receipt of my email or anything else. That is unless you include Paul Flynn's email below which was a waste of time and internet use.
My parents were brought up and brought me as a Labour Party supporter and I bet that they are turning in their grave over the lack of concern of this party's representative's about their son and grandson problem's.
Please take note of the above at any elections as you may need help in the future yourselves.
Paul Flynn, MP for Newport West
Email... 22 April 2004, 15.55
Dear Mr McGuire,
Contact Paul Flynn by clicking HERE
email... 27 April 2004 18:01
Thank you Mr Flynn for your reply to my email and your comments of sympathy and sadness that you have expressed about the loss of our son Brendan Sean McGuire. Also for the disgust you have shown about the way we were treated subsequently by Gwent Healthcare NHS Trust and their robbing our son of his body parts. My wife and myself have taken great comfort from your words.
What planet am I living on? Paul Flynn offer sympathy and help to Joe Public., no chance.
The only reason that I forwarded on the email to you was at sometime in the future, I will be asked if I have approached my local MP and I can now say yes and what a waste of time it was. It was a couple of years ago that I asked for your help when Newport Borough Council was trying too evict my wife and myself. Your reply to me was 'I cannot get involved' so I did not expect any other reaction from you.
Well because you could not get involved, I fought the case alone and WON. Newport Borough Council; were ordered by the County Court to carry out every repair that I had been asking for the previous 8 years and ordered by the County Court to pay me compensation for their failuire to carry out those repairs. My Legal Aid bill was nearly £4000 and I estimate that the total cost of that case was near £10.000. £10,000 of public money that went to the 'legal eagles' because you WOULD NOT get involved. You are personally responsible for that waste of money.
With regards to the comment that you did make on the legal action side of the website, well that is fully in control of my solicitor and if I wanted your comments on that side, I would have asked for them.
You Mr Flynn have forgotten your roots and the roots of the Labour Party and I am certain that on many occasions you can be heard singing to the song the 'Red Flag' the words, 'the working class can kiss my arse, I've got the MP's job at last'
You Mr Flynn and Arry Jones have to earn respect, thats the only way you will get it but never from me.
I see that because Arry Jones is under fire from so many Newport residents as are all the labour party representatives because of their complete failure to take notice of the views of Newport's residents and the fact that they awarded themselves £20, 000 for a job that they volunteered to do and were more than handsomely paid for that job, you had to write to the South Wales Argus last week to try and support them. As someone who also wrote to SWA said 'its worth £20,000 to get rid of them'.
What's your price!
I'll never ask for your help? again in the future and my advice to anybody that reads this is not too either that is unless you want help in ILLEGAL activities such as drug taking and body snatching and God knows what else.
Your email to me has already been posted on Brendan's website and this reply will be also as soon as I send it to you.
It should be noted that Paul Flynn MP for Newport West as run many campaigns such as getting druggies more fixes and trying to abolish Bull Bars, etc and even stepping in many times in the local newspaper to defend the local Labour Council and its Labour members from the flak they receive from the residents of Newport. Why can't they do that themselves? The campaigns he started have always failed or even made an impression (nobody takes any notice of him), so I am very thankful that he NEVER gave me any help as it would have been an instant lost cause. You can tell that, by the fact that he has had to set up his own website to tell everyone 'how wonderful he is', a true legend in his own mind!!
There has been no further reply from Paul Flynn, I wonder why?
Sally Davies, Producer Current affairs, BBC Wales
email... 19 April 2004 10:00
Thanks for your email, and glad to be able to help. I've had a look at the website, which very nearly moved me to tears.
If you would like publicity for it when it's launched let me know well in advance as it may be that our radio investigative current affairs programme would be interested. Don't worry though we won't publicise it until you give the word.
What strikes me as the worst thing is the way you were misled. I think in those days keeping tisse was the norm, even though it was obviously wrong to do it without the relatives' knowledge and consent.
But what you've had to go through to get to the truth about it all just shows what a fight people have when they come up against authority. It's appalling if they think you can just be fobbed off like you don't matter.
Please do keep in touch. And if your cousin's grand-daughter's family want to talk to me about their experience of gastroschisis I would be pleased to hear from them.
With very best wishes,
Tanya Ashton, Bettws resident
email... 22 April 2004 21:38
June and myself as well as countless other families whose children had their organs retained could have taken great comfort from the fact that these organs had been used too help other children such as Joel so that they could lead a normal life. Unfortunately as in our case, this did not happen and the body parts were just put into storage, ours for 28 years. Why take them and why store them, nobody has as yet told us.
Frances Bowers, Southampton
email... 26 April 2009 13:32
Hello Shaun and June. I was shocked to say the very least to read your most moving story of baby Brendan. No parent should have to suffer extra heart break after the loss of a child for so many years. It fully endorses what I already know. That is-------parents are kept in the dark on many issues, almost as if they have no right to be even asking questions! The red tape is firmly pulled tight. I am so glad you wouldn't let go. Carry on all your good work.
South Wales Argus, April 24, 2004 and Western Mail, April 26, 2004
click image's to enlarge
Leanne Wood, Welsh Assembly Member for Plaid Cymru
email... 04 May 2004 12:46
Dear Mr McGuire
Jan Robinson, Treasurer of Pity II
email... 04 May 2004 23:13
From talking to families it is so clear that many feel
very frustrated and justifiably angry that nobody has been held
accountable for what happened to their child or relative. Discovering that
your child or relative is involved in unconsented organ/tissue
retention is bad enough without having to fight to discover the truth. We
know from experience how this can erode your trust and confidence in any
organisations, especially those that are meant to help. There is no
excuse for dealing with families in this way.
Note... Jan was a member of the Retained Organs Commission panel and was present at the meeting of the ROC in Cardiff on March 12 - 13, 2003. See ROC page on this website.
Jane Hutt AM
Minister for Health and Social Services, Welsh Assembly.
This is a reply I have received from Jane Hutt Am in a PDF document
Email... 14 May 2004 10:41
Kay Wadey, Cherub
(Cambridge Helpline East Anglia Region Support Unit for Bereaved Parents)
Email... 21 May 2004 00:53
As you probably know, it is such common practice to
take’ tissue’ from the deceased at post mortem, it’s likely to be the norm
that families find tissue was retained, at least long enough to miss the
funeral if not for years